Experience Of Chronic Obstructive Pulmonary Disease (COPD) Patients In Self-Care
DOI:
https://doi.org/10.54832/nij.v5i1.1140Keywords:
COPD, Experience, Self-CareAbstract
Self-care is a crucial aspect of COPD management, as it can improve quality of life. However, many COPD patients still face challenges in self-care due to various factors, one of which is social support. The purpose of this research is to explore in-depth the support and barriers to self-care in COPD patients. This study was a descriptive qualitative research with a phenomenological approach through in-depth interviews. Participants consisted of 6 people from RSUD Dr. Soedarso Pontianak selected by purposive sampling technique. The inclusion criteria were COPD patients diagnosed for approximately six months, able to participate in interviews, with adequate understanding of their condition, and residing in Pontianak. The exclusion criteria were patients with comorbid acute or chronic illnesses, those experiencing COPD exacerbations, or not residing in Pontianak. The research instruments used were a voice recorder (mobile phone), in-depth interview guidelines, and stationery. Data analysis used the Miles & Huberman analysis method. The study produced three main themes, namely the initial experience and process of self-care, support and expectations in self-care and barriers to self-care. This study shows that the experience of COPD patientsn self-care is influenced by supporting and inhibiting factors. Supporting factors include family role support, social environment, quality and expectations of health services that help patients in maintaining health and managing symptoms. Inhibiting factors, such as environmental influences, physical limitations, limitations in medication management and lack of social support and stress that worsen the patient's condition which hinders the patient's self-care process.
References
Adiana, I. Nengah. 2022. “Hubungan Antara Tingkat Pengetahuan and Status Ekonomi Dengan Perilaku Perawatan Diri Pasien Ppok.” Caring 6(2):35–43. doi: 10.36474/caring.v6i2.249
Agustin, Nyoman Ayu, Anik Inayati, and Sapti Ayubbana. 2023. “Penerapan Clapping and Batuk Efektif Terhadap Pengeluaran Sputum Pada Pasien Dengan Ppok Di Ruang Paru Rsud Jend. a Yani Kota Metro Tahun 2022.” Jurnal Cendikia Muda 3(4):513–20. ISSN : 2807-3469
Ainurrachman, Yessi, Mamat Lukman, and Ahmad Yamin. 2024. “Gambaran Intervensi Keperawatan Home-Based Walking Exercise, Pursed Lips Breathing, and Effective Cough Pada Keluarga Dengan Penyakit Paru Obstruktif Kronis (PPOK).” SENTRI: Jurnal Riset Ilmiah 3(3):1275--1289. doi: 10.55681/sentri.v3i3.2409
Almubarok, Allama Zaki, and Muhammad G. A. Putra. 2024. “Case Report of a Patient With Inaffective Breathing Pattern in Copd in the Marwah and Raudhah Rooms of Pku Muhammadiyah Hospital Yogyakarta.” JTH: Journal of Technology and Health 2(1):23–39. doi: 10.61677/jth.v2i1.144
Anagnostou, Aikaterini, Christopher Warren, Jennifer Dantzer, and Audrey Dunn Galvin. 2024. “Patient-Reported Outcome Measures in Food and Drug Allergy.” The Journal of Allergy and Clinical Immunology in Practice 12(10):2591–98. doi: 10.1016/j.jaip.2024.04.053
Annisa, Mutiara. 2022. Kualitas Hidup: Studi Pada Pasien Penyakit Paru Obstruksi Kronik (PPOK). Adab.
Arabyat, Rasha M., and Dennis W. Raisch. 2019. “Relationships Between Social/Emotional Support and Quality of Life, Depression and Disability in Patients With Chronic Obstructive Pulmonary Disease: An Analysis Based on Propensity Score Matching.” Annals of Behavioral Medicine 53(10):918–27. doi:10.1093/abm/kaz002
Benzo, Maria V, Paul Novotny, and M. S. Roberto P. Benzo. 2022. “Chronic Obstructive Pulmonary Diseases : Adding Granularity of COPD Self-Management to Impact Quality of Life.” Journal of the COPD Foundation 9(2):277–84. doi:10.15326/jcopdf.2021.0277
Clari, Marco, Federica Riva-Rovedda, Valerio Dimonte, and Maria Matarese. 2024. “Self-Care Styles of Patients with Chronic Obstructive Pulmonary Disease: A Mixed Methods Case Study.” Heart & Lung: The Journal of Cardiopulmonary Adn Acute Care 68(1):231–41. doi: 10.1016/j.hrtlng.2024.07.011
Farkas, Árpád, Frantisek Lizal, Jan Jedelsky, Jakub Elcner, Alpár Horváth, and Miroslav Jicha. 2019. “Simulation of Airway Deposition of an Aerosol Drug in Copd Patients.” Pharmaceutics 11(4):1–10. doi: 10.3390/pharmaceutics11040153
Fiantika, Feny Rita, Mohammad Wasil, Sri Jumiyati, Leli Honesti, Sri Wahyuni, Erland Mouw, Imam Mashudi, Jonata, Nur Hasanah, Anita Maharani, Kusmayra Ambarwati, Resty Noflidaputri, Nuryami, and Lukman Waris. 2022. Metodologi Penelitian Kualitatif. Padang: Global Eksekutif Teknologi.
Global Initiative For Chronic Obstructive Lung. 2023. A Guide for Health Care Professionals. Sydney: GOLD.
Hosseinzadeh, Hassan, and Mahmmoud Shnaigat. 2019. “Effectiveness of Chronic Obstructive Pulmonary Disease Self-Management Interventions in Primary Care Settings : A Systematic Review.” Australian Journal of Primary Health 25(3):195–204. doi: 10.1071/PY18181
Imamah, Ida Nur, and Dyah Rahmawatie Ratna Budi Utami. 2022. “Perbedaan Pengaruh Kombinasi Terapi Nebuliser Dengan Batuk Efektif and Pursed Lip Terhadap Sesak Nafas Pasien PPOK.” Profesi (Profesional Islam) : Media Publikasi Penelitian 20(1):1–16. doi: 10.26576/profesi.v20i1.98
Kermelly, Sophie B., and Jean Bourbeau. 2022. “EHealth in Self-Managing at a Distance Patients with COPD.” Reproductive and Developmental Biology 12(6):773. doi: doi.org/10.3390/life12060773
Lestari, Citra, and Riska Wani Eka Putri Perangin-angin. 2024. “Penerapan Posisi Semi-Fowler and Teknik Pursed-Lip Breathing Untuk Meningkatkan Saturasi Oksigen Pada Penyakit Paru Obstruktif Kronik (PPOK) Di Ruang Cendrawasih Rumah Sakit Vita Insani Pematangsiantar Tahun 2024.” Jurnal Akper Kesdam I Bukit Barisan : Wirasakti 09(01):54–61. E.SSN : 2528-2042
Lima, Claudia. 2023. “COPD: Understanding the Effects of Cold Weather on the Disease and Avoiding Exacerbations.” Carenity. Retrieved November 5, 2024 (Available from: https://www.carenity.us/condition-information/magazine/news/copd-understanding-the-effects-of-cold-weather-on-the-disease-and-avoiding-exacerbations-1799).
Miles, Matthew B., and A. Michael Huberman. 1994. Qualitative Data Analysis: An Expanded Sourcebook. 2nd ed. Sage Publications.
Najihah, and Estania Megaputri Theovena. 2022. “Merokok and Prevalensi Penyakit Paru Obstruksi Kronik (PPOK).” Window of Health : Jurnal Kesehatan 5(4):745–51. doi: 10.33096/woh.v5i04.38
Nurmayanti, Agung Waluyo, Wati Jumaiyah, and Rohman Azzam. 2019. “Pengaruh Fisioterapi Dada, Batuk Efektif, and Nebulizer Terhadap Peningkatan Saturasi Oksigen Dalam Darah Pada Pasien PPOK.” Jurnal Keperawatan Silampari 3(1):362–71. doi: 10.31539/jks.v3i1.836
Poedjijo, Yanuar Surya Saputra, Raveinal, and Dwitya Elvira. 2024. “Effectiveness of Drug Allergy Management : A Meta-Analysis.” Bioscientia Medicina : Journal of Biomedicine & Translational Research 8(11):5342–56. doi: 10.37275/bsm.v8i11.1115
Reiszadeh, Iman, Shahla Abolhassani, Reza Masoudi, and Soleiman Kheiri. 2022. “The Effect of Self‑care Program Based on the Orem Self‑care Model on Fatigue and Quality of Life in Patients with COPD.” Journal of Nursing and Midwifery Sciences 9(4):241–48. doi: 10.4103/jnms.jnms_26_20
Rohmah, Ulfa Nur, Muhammad Amin, and Makhfudli Makhfudli. 2020. “Evidence-Based Faktor Yang Berhubungan Dengan Kualitas Hidup Pasien PPOK Stabil: A Systematic Review.” Jurnal Penelitian Kesehatan “SUARA FORIKES” (Journal of Health Research “Forikes Voice”) 11(3):233. doi: 10.33846/sf11303
Sari, Devi Permata, Hary Nugroho, and Abdillah Iskandar. 2021. “Gambaran Tingkat Kecemasan Mahasiswa Fakultas Kedokteran Universitas Mulawarman Sebelum Menghadapi OSCE.” Jurnal Sains Dan Kesehatan 3(4):482–88. doi: : 10.25026/jsk.v3i4.348.
Scoditti, Egeria, Marika Massaro, Sergio Garbarino, and Domenico Maurizio Toraldo. 2019. “Role of Diet in Chronic Obstructive Pulmonary Disease Prevention and Treatment.” Nutrients 11(6):1–32. doi: 10.3390/nu11061357.
Shirvani, Nayereh Jafari, Fatemeh Ghaffari, Zahra Fotokian, and Mahmoud Monadi. 2020. “Association Between Perceived Family Social Support and Self-Care Behaviors in Elders with Chronic Obstructive Pulmonary Disease ( COPD ): A Medical Center-Based Study from Iran.” The Open Nursing Journal 14:1–7. doi: 10.2174/1874434602014010001.
Sumner, Jennifer, Anjali Bundele, Ravi Shankar, Lin Siew Chong, Yanika Kowitlawakul, and Amartya Mukhopadhyay. 2023. “Living with COPD: Understanding Patient Experiences through the Lens of Photovoice.” BMC Pulmonary Medicine 23:433. doi: 10.1186/s12890-023-02738-4
Sutrisno, and Rondhianto. 2024. “Stress Coping Framework as an Effort to Improve Quality of Life in Patients with Chronic Obstructive Pulmonary Disease: A Literature Review.” MAHESA: Malahayati Health Student Journal 4(8):3297–3311. doi: 10.33024/mahesa.v4i8.15169
Terry, Paul D., and Rajiv Dhand. 2020. “Maintenance Therapy with Nebulizers in Patients with Stable COPD : Need for Reevaluation.” University of Tennessee Medical Center 6(2):177–92. doi:10.1007/s41030-020-00120-x.
Widiawati, Sayu, Ida Ayu Agung Dewi Sawitiri, and I. Wayan Aditya Nugraha. 2024. “Pemberdayaan Keluarga Pasien Dalam Perawatan Penyakit Paru Obstruktif Kronik ( PPOK ) Di Rumah.” Marwadewa Minesterium Medical Journal 3(1):45–49. doi: 10.22225/wmmj.3.1.2024.45-49
Yulanda, Nita Arisanti, and Mita. 2019. “Pengaruh Modul Supportive Educative Terhadap Perawatan Diri Pasien Penyakit Paru Obstruktif Kronik.” Journals of Ners Community 10(02):157–68. doi: 10.32831/jik.v8i2.251
Zeb, Hussan, Ahtisham Younas, Israr Ahmed, and Anwar Ali. 2021. “Self-Care Experiences of Pakistani Patients with COPD and the Role of Family in Self-Care: A Phenomenological Inquiry.” Health and Social Care in the Community 29(5):e174–83. doi: 10.1111/hsc.13264
Zohal, Mohammad Ali, Sima Rafiei, Nafise Rastgoo, and Sanaz Jamshidi. 2020. “Exposure to Stressful Life Events among Patients with Chronic Obstructive Pulmonary Disease : A Prospective Study.” 377–82. doi: 10.5603/ARM.a2020.0122
